Sunday, August 13, 2023

August 2023

 I've been reading back over blogs from 2010.

 13 years ago!

Some laughter. Some tears. More and more tears.

13 years ago. Still had Bill. Still had Granny. Ralph, Roger. Dad. Stephen . Pictures of Becky without the ravage of loss.

So many changes.  So much loss.

We adjust. 

This past week, I  was in East Texas. Robbie had back surgery.  He is recovering quite well.

I painted the vanity  cabinet in Kathie's hall bathroom.  Robbie  coached me through re-installing the trim. Yay! Who knew *I * could use a NAIL GUN!! to hang trim? (It is  NOT perfect. If you need perfect, hire professionals!) Thankfully, when Becky took down the trim, she labeled where it came from!!

I took Mom and Kathie to town twice during the week I was there. Once to Longview, once to Tyler. FYI, Kohls  doesn't have electric  carts.  I pushed Kathie  in manual wheelchairs. It wore me out! 

I met Tommy and his Ruby in Terrell, Texas this morning.  Then drove home to Colcord.  It added an additional 200 miles to my drive, and I am worn out! Since arriving  home, I am  on my second  load of laundry.  Nickole  is angry, stomping and slamming  stuff around because I  won't  help her create a mask she wants. I bought stuff for her to use on her mask, but I  am too tired to work on it after almost nine hours of driving. When she asked for a specific  solution, my idea of twisting wires made her angry... and my refusal to engage further has really  made her angry.  It's  nearly  9 at night and I  don't  have it in me to participate in the mask project she started in  April at this moment. If I am the jerk right now, I  really  don't  care. I am exhausted. 

We are going to west Texas next weekend  for Stephen  Jones headstone being installed.  Nickole will spend week after next with Glynna.  Once she returns, we are having our Back To School... a solid 3 weeks later than  normal.




Wednesday, June 14, 2023

Aunt Lenny would be proud

This is what a pallet of mulch looks like. The kid loading it was not very good at operating a forklift.

The mulch still needs raked smooth. I was warned off by a nest of red wasps that live in the drainspout. They were none to pleased at me working around their home!

We edged around the house.

This is where Mom's Container Garden will be. There's and underlayment of cardboard. Ought to keep weeds to a minimum.

Tuesday afternoon! Almost done!

The path out to the bench. It will have stepping stones. 

The Container Garden has been started. A storm blew in, so we stopped for the night.
All 75 bags of mulch were used. We need about a dozen more.
But not today.  My arms are so tired, I can barely lift them.

 

Monday, June 12, 2023

It's been a couple of months...

 I stayed in East Texas as long as I could, going home the last day of March. Tom and I were back by the 22 of April, helping paint Dad and Kathie's house.

Days before we came down... I discovered a tick on my left shoulder. It already had been there a few days, apparently.  Our painting trip was cut short and we went back to Oklahoma.  I had developed a target rash from the tick bite.Classic Lymes symptom.  Normally, it's a ten day course of doxycycline.

My test came back negative... but positive for  an older case of Lymes. Looking up what that meant... the bacteria had taken hold in my body. The new bite was like gasoline on a fire. Back in March when I  thought my headache, stiff neck, and flu symptoms were an allergic reaction to food dye (skittles shared on the anniversary of Bill's death)... it was a classic  Lymes reaction. 

I had weeks of exhaustion.  I went to Texas right after our newest  grandblessing was born! Felicity Sage Coder born May 13, 2023!

I did ten days of hyperbaric treatments... twice a day when I could. Back at home... exhaustion  reigned. I  could barely function.  Gradually I  began to get better. I'm taking something like 20 herbal supplements and vitamins!

(Memorial weekend I went to the ER with what felt like a heart attack... I assume. It was diagnosed as stress). Follow up has a referral to get checked by a cardiologist... which hasn't been scheduled yet.  They're  supposed to call me. Eventually. 

So I took Nickole to  her Counselor In Training  summer camp at Christ for The Nations. She will be there until July 20th... staying with Tommy and Ruby in Dallas. I decided a few days at my Mom's and at Kathie's was a good call.

Nickole and I drove down Thursday.  Friday, Mom and I took Nickole to Dallas. Mom and I visited Ikea while we were there.

 Saturday, I  textured the hall bathroom for Kathie. The special texture  roller was NOT working for us. So I did the entire room with a car wash sponge... my shoulder muscles are still screaming!

Sunday... Mom and I drove down and had a wonderful  visit with Chris.  That's  an all day endeavor! But we got home in daylight.... and weeded the flowerbed. 

Today... Mom and I went over to Kathie's. She had a Doctor appointment.  Mom and I painted the newly textured  bathroom.  Then we went and got a pallet (75 bags!) of mulch... 6 compressed bags of potting soil, and a bale of peat moss. It's  eleventy  billion degrees in  Texas today. We parked the truck full of mulch and such.. and came inside. 

I  put together an Island we got  at Ikea on Friday. Once it cooled off, we started unloading and placing mulch until rain started about dusk.

Tomorrow... Tuesday... I  need to unload and place the rest of the mulch. Did I mention it was 75 bags? Seventy. Five. Bags.

I will be channeling my inner Aunt Lennie.

We need to bury Ralph's  cremains in the next couple of days. Then home again to Oklahoma. 

I hope your  day is  blessed!


Wednesday, March 22, 2023

Some Things Take Time to Process

 My previous blog post was about losing my Dad. I think I wrote it on a Thursday. Late Friday night, my step-dad Ralph was "having trouble breathing". Instead of calling me, or my brother Robbie (we were at my Dad and Kathie's house, ONE MILE AWAY!), or an ambulance, Ralph drove himself and my Mom to the ER. He was admitted to the hospital after some testing, because "his heart enzymes were high". (About 3700, with normal being <34). On Monday afternoon, the 10th of February- Ralph was sent home, with instructions to follow up with both his cardiologist and his Primary Care physician. As he was being dismissed, the nurse mentioned that Ralph had had a "type 2 myocardial event". This was the first we had heard anything about a "heart attack"! If the Doctor had said anything to Ralph about it, he had not told Mom.
We stopped at the pharmacy on the way home, to fill the new prescriptions. When Mom and I returned to the car where Ralph had waited, he was very agitated. He thought we had been in there for hours! (20 minutes, pretty quick for a pharmacy.) He said that he had passed out three or four times while we were in there, and Something Is Wrong!
I was all for returning immediately to the hospital, but Ralph insisted on going home. It was midafternoon when we arrived back to their house. (I had stayed with Mom while he was hospitalized.) Ralph was having a bad afternoon. He kept telling us, "Something is wrong". Every time he would fall asleep, he would stop breathing. He would awaken with a gasp, and they cycle would begin again. He didn't want Mom to sleep, she had to be awake to make sure he kept breathing. Just as darkness fell, Ralph said that yes, we should go back to the hospital. We loaded up, and went back to the ER. They took Ralph back to triage. They took blood, ran tests... and waited several hours before drawing more blood, and running more tests.  I mentioned the stopping breathing to the Doctor. She said,  "That is classic sleep apnea. Follow up with his Primary Care for that!" (Ralph had never before shown any sign of sleep apnea).
Later, the Doctor came in, and told Ralph, "You're going to be fine! You just need to follow-up with your primary care physician later today (It was the wee hours of Tuesday morning). You had a mild heart attack (I think she said Myocardial Event) Saturday morning, but your enzymes are trending down! Your enzymes were at 3700 Saturday, 2750 when they sent you home yesterday afternoon, and you're at 2450 now... trending down. The ER is for EMERGENCY CARE. You go home, you make an appointment with your Cardiologist and your Primary Care doctor. DO NOT COME BACK TO THE EMERGENCY ROOM. Not Unless your pain is at a 10! The worst pain you have ever felt in your life! Just follow up later today with your other doctors!"
He was dismissed, and we went home. I got a few hours of sleep. Mom did not. When Ralph would fall asleep, the breathing stopped. He kept telling us over, and over again... Something is Wrong! Something is Wrong!
Mom tried getting through to the Primary care and to the cardiologist... One was completely unavailable and would return our call later. (Didn't happen!) The other scheduled an appointment for the following Monday- a week out! "Sorry, we just don't have anything sooner!"
ALL. Day. LONG. Ralph would tell us, "Something is not right!"
About 4:30 or so, Ralph said, "I hate to make you drive up there again, but I need to go back to the hospital." I didn't argue.  It took awhile to get him loaded into the car, because he was exhausted after only a few steps.
Back we went to Tyler. I got help getting Ralph out of the car and into a wheelchair. He kept saying, "They need to hurry, I'm not going to make it. They need to hurry!"
We sat in the lobby for 15 minutes or so. In Triage, he gave them the symptoms again, repeating, "Hurry, I'm not going to make it! You need to hurry!" 
The nurses wheeled him down the hall, with Ralph repeating, "Hurry, Oh hurry!
So, they got him into a treatment room. The nurse asked him to get out of the wheelchair and on to the bed. "I can't", he told her. She helped him up and onto the bed.
"Mr Wiggins, I need you to take off your shirt and get into the hospital gown." Ralph just stared vacantly off into the distance. The nurse repeated her instructions firmly, several times. Ralph stared off. The nurse waved her hand in front of hime, snapping her fingers and repeating, "Mr Wiggins? MR WIGGINS!"
I had stepped into the hallway so he could undress, but the door was open.

 Codes were called. Mom was sent into the hall. Suddenly, Ralph's room was The Place To Be for medical personnel. All hands on deck. 
They shocked his heart. Twice. Violent CPR. For 13 minutes. 
We could see all that was happening. A macabre ballet, as each person did their job. At least 15 people crowded into the small treatment room.
Ralph's heartbeat was finally restored. He was taken for a base line brain activity scan. He was on a ventilator. He was settled in to a room in ICU, but we were warned there was little hope after so long of CPR. We went home to rest, some time after 10 pm for whatever the next day might bring.

The next morning, we were back at the hospital before 6 am. Ralph had improved just a bit during the night. By afternoon, the breathing tube was removed. He ate some jello that was fed to him. He ate ice, sipped some water. He was mostly "out of it", but before we left for the evening, he told Mom to be sure his shed was locked! That was our Ralph for sure.

The next morning, Thursday, came the hard talks from the Doctors. The heart enzymes were 72,000>.  Ralph's heart was severely damaged. They could not do a test to see if it was repairable, because the test would shut down his kidneys, which were operating at <3%. Dialysis was not an option, because his heart would not survive the stress of dialysis. So... Ralph was sent home on Hospice care.
My son Daniel arrived Friday afternoon, and helped Robbie, Ruby, and I get the bedroom set up for Ralph's care. (Dan is a paramedic). The Hospice worker put me as primary on giving Ralph the medications that would help him breathe more easily and reduce his stress. (Mom was in dire need of sleep. She had had one night of rest since the entire ordeal began the previous Friday.) 
Dan slept in the bedroom, due to his beautiful Dante wanting to roam the house and chase befriend Mom's kitty. I slept on the couch, where I could hear Mom call if she needed me. We were up and down all night. Ralph needed to urinate, but his kidney function was so low he couldn't go. I gave him the medications alternating every 2 hours. At one point, he was having so much trouble breathing, I called the Hospice emergency line and spoke to the nurse. She dispatched a nurse who arrived early Saturday morning. He evaluated Ralph, and suggested I give both meds at the same time. He was reassuring us that the first week of hospice care is hardest on the family. That we would figure out a routine that worked for us, and we could transfer Ralph to their care facility if it became too much for us.

During the day Saturday, Ralph ate a few bites of breakfast, and a bit of lunch. He assisted Mom on getting him onto the bedside potty. He spoke briefly to visitors.
After he fell asleep in the early afternoon, Mom laid down on the couch for a nap. Dan went to visit Kathie. I was on the computer, messaging with a friend, who has been down the same road. She was telling me of her relative's final days. I had just remarked that it sounded like Ralph's day Friday, and this morning. I heard Ralph call out. It was time for the medication, so I went back to check on him.

He wanted to sit up and get to the bedside potty. To preserve his dignity, I had been stepping out so that Mom could help him, but she was asleep. I called out to her, but exhaustion had taken its toll. She was OUT. I called over to Kathie's for Dan to come right back. It is only a mile. I went back to Ralph, who alternated trying to sit up, with passing out completely. I got him laid back down, and noticed he was staring far away.
"Mama?" he said. "MAMA!" with strength, and the joy of recognition in his voice. 


I thought he was gone, but he struggled awake. "I can't catch my breath," he said. He struggled to sit up again. I got him the medication, but he spit it back out, his mouth too dry to swallow. I felt like I needed to pray for him. I asked God to send his Holy Spirit to ease Ralph's way.
Dan arrived, and we saw we were too late to get him on the potty. Mom woke up when Dan came in. She came in as Dan and I took off Ralph's wet clothing, and changed the pad beneath him. Ralph assisted, lifting his hips and rolling one way. Then, he wasn't assisting.
Robbie and Ruby arrived. We were by his bedside, when Dan listened to the faint heartbeat stop. 
Ralph Walter Wiggins passed at 5:22 PM. 
I had called the hospice nurse and let her know things were declining in a hurry right after I had called Dan, but before he had returned. I called her back to let her know he has passed, less than 24 hours  after arriving home on Hospice care.

We lost my Dad on the 5th, and Ralph on the 18th. Less than 2 weeks apart.
I may or not post about the Memorial services next time.

Thursday, February 9, 2023

Trying for words

 This is the fourth day since my Dad passed away. He's been sick a long time. For years, the Doctors talked about a heart valve problem. Surgery was risky- so much so that it was better to leave the valve problem until such a time as it HAD to be done. Once that time came... Dad was too frail to undergo surgery. Last month, in January, Dad had his long-awaited appointment with a Parkinson's specialist. We had been told about 5 or so years ago, that he had Parkinson's. January 23rd, 2023, we learned that he does not  Did  not have Parkinson's, but some form of dementia, to be determined. His next appointment was set for the 23rd of this month. It's a moot point now what he did have. I am convinced it was Lewy Body dementia, but we will never know.
Dad's heart began to fail during the past few months. He was starved for bananas all the time. It was the one food- bananas and peanut butter! That my brother Robbie (Dad's primary caregiver) was able to get him to eat. Last Thursday, Dad had a lot of swelling and fluid retention. Second time THIS YEAR that he has retained fluids so terribly that his feet were the size of footballs, and the swelling was going up his legs. He went to the Doctor's office, and lab work was ran. Dad had too much potassium. The diuretics were not working. He was advised to return to the hospital at once. It was late in the day, Kathie opted not to battle dad back to the hospital, they would return in the morning for follow up lab work. 
Friday, Dad was noticeably worse. He went in for labs, then headed home. Arriving at home, the phone was ringing. bring him to the ER! Labs are worse, he is in critical condition. Kathie called 911, asked for an ambulance that would specifically take them to the hospital that they needed to go to. The ambulance arrived, and refused to transport dad to the hospital where his Doctors awaited. They would take him to a hospital that was 4 miles closer to dad's house, but in the OPPOSITE DIRECTION!!!. or help my brother load him into the car for my brother to drive him. Since the Doctors awaited him at their preferred hospital, brother had them help load Dad into the car. I was on my way down from NE Oklahoma... brother called to ask me to please hurry. As I got near dad's house (en route to the hospital) He called me again.. stop by the house for forgotten items, but don't linger, come ASAP! He had ER personnel help him unload Dad, and then as he went to park... who should also arrive? The ambulance driver who refused to take Dad to the very hospital that they had requested when they called 911!
I arrived to the hospital moments before Dad was taken to the ICU floor. Once they had Dad in a room, we were permitted in with him. They had a CPAP mask on him... the full faced, triangular mask like you see in movies on fighter pilots! Dad has always had a terrible phobia of having his face covered. He fought, and fought. we told the nurses, He will do better and stop fighting if you just PLEASE take off the mask and use a nose cannula! They fought Dad some more. I was AMAZED at his strength, as he grabbed the nurse's hand that was trying to put the mask back on him. I had to pry his fingers off her hands. He settled a lot after the mask was off, but his O2 numbers were awful. The nurses all said he should be in  Critcal care ICU, not the moderate ICU. They called to transfer him to the critical care ICU. They told us they HAD to put him on a ventilator. All of us knew, Dad would never go for a ventilator! The nurses called us into the hallway. "If we do NOT put him on a ventilator... He is going to die. Soon. If we refuse the ventilator... they will remove all the drugs to reduce the potassium, and he will get only comfort care, Morphine for pain. Ativan for anxiety.
Kathie looked to Robbie and I. We all three know Dad's wishes. Kathie said she didn't want to defy his adamant wishes, but if Robbie and I insisted, she would.
What do you do, when you know your loved one has said for years and years, before any dementia set in... DO NOT RESUSCITATE ME. I REFUSE A VENTILATOR! PLEASE LET ME GO! 
Robbie and I agreed.
How hard is it when you know you just doomed someone to death? It's hard. Pardon me, it's FUCKING HARD! (I look at that sentence... and cannot make myself delete it. You know I don't use that sort of language. But, there it is)
The nurses turned off the IV of medicine that reduced the potassium. Dad was given morphine. he was given Ativan. 
And the wait began. 
He had not eaten nor drank, nor pooped or peed... already for many hours. He ripped the catheter off. The bed was not wet. When he seemed very agitated, the nurses came and gave a drug. The 'death rattle' was obscene. They vacuumed his throat, and showed me how. Why was I afraid he would drown in the secretions? He was dying.  He HATED the suction. The faces he made, clamping his gums on the vacuum tube, and frowning so hard! They started using a nose suction hose... until one nurse said, this is hurting him. See how he hates it? Let's not do it as often.
Kathie and I, and Robbie stood vigil. Robbie went home to rest, taking Kathie Saturday morning. I stayed. They returned in the afternoon. Later, in the evening, my brother Eric showed up. He had made the 300 mile drive from OK City in 10+ hours. I had been up since 5:30 Friday morning, when we finally persuaded him to leave at 8:45pm Saturday night. I slept in fits, 20 minutes on the chair or floor a couple of times, almost an hour on the daybed. Dad's numbers gradually decreased. Sunday morning, I awaited brothers Robbie and Rick's return. I had basically been awake since Friday morning, with a 375 mile drive and just cat naps . Kathie and I went to their house for a shower and a nap on a bed. I had just fallen asleep when Robbie called. COME QUICKLY! THEY TURNED OFF DAD'S Defibrillator!
I woke Kathie. We dressed and raced towards the hospital. Rick hadn't shown up as promised. Robbie called us again, begging us to hurry... and as we spoke, our dad flatlined. He was pronounced dead at 11:13 AM Sunday, Feb 5, 2023. My brother Robbie, and his beautiful wife, Ruby, were present.
Dad beat the horrible dementia diagnosis. How horrible to know your brain is betraying you. Easier to believe your body has done so,

Memorial Service March 4, at 2;00 PM
Prichett Community Center. 1092 hwy 1404, Big Sandy/ Prichett TX 75755